Cri-du-Chat Syndrome Support Group


Blaike Myers - Age 5 days

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Blaike was diagnosed with cri du chat at 7 weeks old.  He was having problems with eating and keeping down his formula.  We ended up taking him to Riley Hospital, Indianapolis Indiana and heard the news. 

My mother and myself were there when the genetic doctors tried to explain the syndrome, unfortunatly, there is little information that we know about it. 

We would like to know some more information, and would also like to be in contact with others from or around Frankfort, Indiana. 

If you have any information for us please e-mail Linda Benge ( Grandmother ) at rlbenge@geetel.com or Serenity Gibson (mother) at sgbenge@yahoo.com Thank you !!!!! 

Blaike is now 9 months old, and doing ok.  He has a trach, and is feed by g-tube. 

He is finally tracking with his eyes, and starting to smile. 

Thank you !  Serenity Gibson (mother) and Linda Benge (grandmother)

Email : sgbenge@yahoo.com or rlbenge@geetel.com


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