Cri-du-Chat Syndrome Support Group

Guestbook archives : 1997 | 1998 | 1999 (1) | 1999 (2) | 2000

Tuesday, January 06 - 1998 at 20:17:53

Name: jhemphi@ibm.net
Email Address:
How did you find this page?: From a link on another page
Feedback: Hi, my name is Janet, my husband and I have an eight year old Grandson with CRC. We are having some behavioural problems with him. He slaps himself on the side off his head, when he knows that he did something wrong, he tends to dig at his thumbs and fingers, which end up with sores. He says three phrase words, some signing, fast walk, ears pretty good by himself. He has been living with us for over six years, one of the main things, he is very hyperactive, which doesn't work out too well when he attends school. If anyone out there would like to email me or even leave me a message on having experienced any of these behavioural problems.

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Wednesday, January 07 - 1998 at 06:44:49

Name: Krista Kells
Email Address: Bbfab@aol.com
How did you find this page?: Just strolled on by
Feedback: My husband Bill and I have a 4 1/2 year old boy with CDC and he is the joy of our lives (and sometimes a pretty big headache!!) We live in Canada and have never had the chance to meet any other CDC kids. This site is a big help as it reassures us that we are not alone in this great big world. Would love to hear from anyone willing to share stories and information.

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Wednesday, January 07 - 1998 at 16:02:58

Name: Janet Hemphill
Email Address: jhemphi@ibm.net
How did you find this page?: From a link on another page
Feedback: Hi, Is their a new guest book for January l998? This is a great resourceful way of attaining info on CRC. Thanks to you Jeff

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Thursday, January 08 - 1998 at 06:02:58

Name: Kelly
Email Address: ch 01@Sentex.net
How did you find this page?: Just strolled on by
Feedback: We have a fella in our group home who is 26 and has all the hallmarks of Cri du Chat. He has come a long way with alot of love and redirection over just the one year he has lived with us Please E-mail looking forward to any support . Thanks Kelly

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Friday, January 09 - 1998 at 22:51:56

Name: julie
Email Address: james@022ameritech.net
How did you find this page?: Just strolled on by
Feedback: Great Website! We have a daughter, Becca that was born with CDC. The information we received in the hospital was heart breaking. This site has given us hope and encouragement. Becca is now 9 months old and is the most precious gift. We still have alot of questions and this site is a great source for answers. Thank you.

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Sunday, January 11 - 1998 at 15:10:04

Name: Shinichi&Sachiko Nakatani
Email Address: naknak@wa2.so-net.or.jp
How did you find this page?: A search engine
Feedback: We(Shinich & Sachiko) live in NARA JAPAN.We are 39 years old both.We have 4 children. One of them is Cri-Du-Chat.His name is "RYO" that mean "GOOD". He is our GOOD one. He was born in 12/26/93. Now,he is 4 years old. He can not walk by himself, but he is very cheer!! Recently,He can have smile a little.We are very happy!!

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Sunday, January 11 - 1998 at 17:32:22

Name: Janet Hemphill
Email Address: jhemphi@nibm.net
How did you find this page?: Just strolled on by
Feedback: Hi Shinich and Sachiko Really glad to hear from you. This website for CRC is so wonderful, we can communicate all over the world. If you would like to email my husband Bob and I that would be great. We have a grandson, who is called Jessey, he has been living with us for over six years now. Please keep in touch. Thanks again to you Jeff. Got to see your family picture the other day on the gallery, lovely picture, we are going to get one of Jessey soon.

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Monday, January 12 - 1998 at 02:28:49

Name: Gregory Fasano
Email Address: GFasano000@aol.com
How did you find this page?: A search engine
Feedback: I have an 11 month old son that was diag. with this problem on Tesday, January 6, 1998, and I am looking for all of the information that I can find.

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Monday, January 12 - 1998 at 22:28:34

Name: GERI WOODWARD
Email Address: GWOOD86075
How did you find this page?: From a link on another page
Feedback: I am a mother of a 22 girl with crie du chat. I have been on the net about 2 hours looking for this page. I sent e mail to Jeff. Hope to hear back from someone soon. GREAT IDEA THIS PAGE Thanks GERI

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Tuesday, January 13 - 1998 at 21:22:58

Name: Andra Corceovei
Email Address: year6421@club.innet.be
How did you find this page?: A search engine
Feedback: We have a 8 years old son with CDC syndrome, Gabriel. When i feel down, I read information on the CDC that help me keeping hoping. Gabriel can walk, says some very simple words and uses a sign language named COGAMON. His agresivity totally dissapeared when he began using this language, as people may understand him now. But he wants to say a lot and COGAMON became too poor for him. We would like information on any other speech and comunication therapy. Any mail is welcome. This page is of very great help. Thank you!

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Thursday, January 15 - 1998 at 21:14:52

Name: mary beth morris
Email Address:
How did you find this page?: From the U-NET page index
Feedback: i found this at the library in Folsom, California where I live. My daughter, Amanda, age 2 and 1/2 years has cri-du-chat. I am trying to learn as much as possible about the disorder. I am a member of the 5p- society in the usa and have made alot of connections with parents. Amanda is doing quite well as she can walk, run and has language. We did not get a diagnosis until she was two years old. For the first fifteen months of her life, she developed like a typical baby: sitting, crawling, smiling, wal king, ect. She did have the cat-cry at birth and throughout her infancy but her pediatrician dismissed my concern over her cry. Of course, I had never heard of cri-du-chat and apparently neither had her pediatrician. We took her to several specialists when she was around two because I feared she was autistic as she developed some odd behavoirs such as whirling around repeatedly in circles, fixating on wiggling strings and her language was not where it should be for a two year old. After many doctor visits we were told she probably has some type of genetic sydrome based on some subtle facial abnormalities: a slightly assymetric facies, broad nasal bridge and epicanthal folds. It was I who started researching syndromes and when I read about cri-du-chat I immediately thought of the cry! I spoke to the developmental specialist at UCD Medical Center who had evaluated her earlier and she said it can't be cri-du-chat. But after her blood was drawn for the karotype, I asked the laboratory to make certain chromosome 5 was studied carefully (the doctor was looking for Fragile X syndrome!) and she does have cri-du-chat. She is missing band 15.3 and part of 15.2. My understanding from Dr. Joan Overhauser at Thomas Jefferson is Amanda has one of the smaller deletions. What I am confused about is the mixed information about the relationship between deletion size and mental delay. Can anybody answer this question? Also, I would be so appreciative to hear from any families who have a child who is mildly affected, expecially with regard to eductional issues and therapies. Amanda has no health problems and normal gross motor development. Her fine motor is somewhat weak and her language, while delayed, is definitely coming along. She is saying alot of words and just beginning to combine 2 word phrases. I hope to find some parents out there with similar circumstances. I will also say I have met so many wonderful people throughout this experience and hope to give back to the 5p- community. Thank ypu. My address is 105 Winchester Ct. Folsom, CA USA 95630.

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Monday, January 19 - 1998 at 16:34:00

Name: Janet Hemphill
Email Address: jhemphi@ibm.net
How did you find this page?: From Special Kids WebRing
Feedback: This Guestbook is just GREAT, thanks again to you Jeff and your family for doing this for all of us to be able to communicate all over the universe, letting us know that we are not all alone. I'm still trying to locate Kelly Graham, her email address did't go through. Thanks again Jeff and to everyone else in this support group.

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Tuesday, January 20 - 1998 at 09:37:55

Name: Kathryn
Email Address: curdled@xtra.co.nz
How did you find this page?: A search engine
Feedback: My daughter Rachel is 13 and was diagnosed at age 2 as a cri-du-chat mosaic. I would love to hear from anyone a mosaic child or anyone who has any info about it. Also does anyone know details of the conference this year. All I have found out is that its in Seattle. This is a wonderful site and I'll be checking in regularly

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Monday, January 26 - 1998 at 11:12:56

Name: THERESE ANDERSSON
Email Address: I'M AT SCHOOL
How did you find this page?: Word of mouth
Feedback: I LIVE IN SWEDEN AND I'M DOING A SCHOOL WORK ABOUT CRI DU CHAT.AND THANKS TO ALL OF YOU I'VE GOT SOME REALLY GOOD INFORMATION. BY BY! LOVE FROM THERESE FROM ESKILSTUNA SWEDEN

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Monday, January 26 - 1998 at 20:17:19

Name: Heather Symons
Email Address: Heather.Symons@btinternet.com.
How did you find this page?: From a link on another page
Feedback: This is fantastic! Suddenly we don't feel alone anymore. Our daughter Maria is just 3. She is doing really well and all of the things I read here give me more hope for her future. Thanks Jeff!

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Wednesday, January 28 - 1998 at 16:46:18

Name: Olle
Email Address: olov.persson@gbg.frontec.se
How did you find this page?: A search engine
Feedback: Hello Jeff and everybody else. Nice to see that there is a neww guestbook for 1998. It was quite heavy to read the last messages for last year. Could it be possible to display the guestbook in descending order, i.e. last messages first. Just a thought, Jeff. Therese from Eskilstuna and Sweden, om du läser detta och har mer funderingar över Cri-du-chat så hör gärna av dig! Jag har en dotter på snart 5 år som har Cri-du-chat. Lycka till med ditt skolarbete!

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Thursday, February 05 - 1998 at 00:38:20

Name: Rodney Cook
Email Address: cookrb@ozemail.com.au
How did you find this page?: From a link on another page
Feedback: Thank you for having something on cri du chat online!

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Friday, February 06 - 1998 at 01:59:36

Name: Dale Crossland
Email Address: xland@dayworld.net.au
How did you find this page?: A search engine
Feedback: This is great!! If we only read medical reports,we would feel hopeless.Thanks for putting some humanity and hope into this condition.

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Sunday, February 15 - 1998 at 20:08:03

Name: Jolene Towers
Email Address: jolenetowers@webtv.net
How did you find this page?: From a link on another page
Feedback: Hello everyone! I have a daughter who will be two on Feb. 27. She is doing great. She is starting to take a few steps by herself and is also starting to talk. She says about 10 words consistantly, but has said about 50 words. Most things that she has said we have only heard once or twice. She has even put two words together a couple of times. We have her on a natural food compund that is supposed to stimulate speech. We feel and her theraposts feel that it has really helped. If anyone would like information or would just like to correspond I would love to hear from you. I enjoy hearing about other children with CDC and like to know what different parents are doing for their children. This is a great web. site. Thank you Jeff.

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Monday, February 16 - 1998 at 20:02:59

Name: Jessica Avery
Email Address:
How did you find this page?: From a link on another page
Feedback: Good to have people with experiance to talk to.

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Tuesday, February 17 - 1998 at 19:14:59

Name: Katie Mc
Email Address:
How did you find this page?: From Special Kids WebRing
Feedback: very interesting stuff thanks

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Wednesday, February 18 - 1998 at 14:24:15

Name: GERI WOODWARD
Email Address: GWOOD86075@aol.com
How did you find this page?: Word of mouth
Feedback: My daughter, Greer, is 22 years old and the light of my life. Recently, I lost my Dad, she was very close to him, so she took that really hard. The other day, her friend died. I could not console her for days. Has anyone out there had any experience with death? I mean with our children, trying to explain it. I know she understands most of it, but it breaks my heart. ANY help would be appreciated. Thanks GERI

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Thursday, February 19 - 1998 at 12:28:38

Name: Eric BOTTU
Email Address: eric_bottu
How did you find this page?: A search engine
Feedback: Very good site, thanks for your work. I appreciate the link on search engine for medical informations.

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Thursday, February 26 - 1998 at 17:20:56

Name: Jonathan C. Storr
Email Address: jstorr@ix.netcom.com
How did you find this page?: From a link on another page
Feedback: What an awesome web page! I am the founder of the Support Group for Monosomy 9P (9P- and currently preparing to take in Trisomy9, but not 9P+). We recently had our first regional get-together and will have our next in June. It seems our group is growing internationally too, so it is fascinating to see how your page is set up for that. Also the beautiful photos - always a must! It appears your org. oroginated in England, but I remember talking to someone in Ohio a few years back. I never imagined Cri Du Chat was so well organised. Well congratulations and send any 9P- kids/adults our way. President/Founder(me) Jon Storr & VP/Treasurer Beverly Udell 675 N. Round Table Dr. Las Vegas NV 89110 no E-mail there - yet.

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Saturday, February 28 - 1998 at 04:14:44

Name: Kimberly McCabe
Email Address: kimberly_mccabe@hotmail.com
How did you find this page?: From a link on another page
Feedback: I am very glad you organized a site like this. I am a high school junior taking a human genetics class. I was assigned a karyotype to put together. The next step was to identify what disease the person had. Now, I must write a paper on the disease. I got Cri du Chat Syndrome. However, there was limited information available on the characteristics of the disease and other vital information needed to write an accurate and knowledgeable paper. With the help of your web site, I was able to do so. Thank you! I think it is wonderful to provide information like this to the public. More people should do so. Good luck with you site and thank you!

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Monday, March 02 - 1998 at 00:48:10

Name: erin
Email Address: seanerin@ultranet.com
How did you find this page?: A search engine
Feedback: I am a special needs preschool teacher and I have a 4 yr. old boy with Cri du Chat in my class and possibly a 3 yr. girl with Cri du Chat joining my room soon!!! I was looking for information on the syndrome and for advice from others on dealing with some behavioral issues. This website is great, now I check it all the time to read all the updated messages and have told the parents of my student about it!! thanks

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Tuesday, March 03 - 1998 at 18:20:01

Name: tabatha
Email Address: thinkle@spserver.princeton.k12.oh.us
How did you find this page?: A search engine
Feedback: I am interested in finding out what the difference is between 5P syndrome and CDC. This is my 3rd year as an educational aide working with a little boy who has CDC. After reading some of the questions and comments on the bulletin board, I am wondering what the difference is. Could someone possibly explain? Thank you. Tabatha

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Friday, March 06 - 1998 at 09:58:42

Name: alex busby
Email Address: busbyuk@singnet.com.sg
How did you find this page?: A search engine
Feedback: We have a month old neice who was very recently diagnosed with having a chromosome disorder. We have been told it is 5p or CDC. I have been searching the net to locate a help/support group and also to find out some helpful information for them. Thanks for a helpful/informative webpage. I will visit it frequently. I will pass your contact address etc to them and I am sure they will be in touch.

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Wednesday, March 11 - 1998 at 12:43:04

Name: Pam Hill
Email Address: gpdsa@apex.net
How did you find this page?: A search engine
Feedback: I have a 20 year old son, Daniel, who has cri du chat syndrome. (We live in the USA.) Just got hooked up to the internet and was surprised to find so much info about cri du chat.

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Thursday, March 19 - 1998 at 11:55:42

Name: Louise Burke
Email Address: themaherasylum@clubi.ie
How did you find this page?: A search engine
Feedback: If you have any information on behavioural problems ie pinching and pulling hair etc please email me. Thanks Louise

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Wednesday, March 25 - 1998 at 21:57:13

Name: Sarah Tipton
Email Address: sarahftipton@hotmail.com
How did you find this page?: A search engine
Feedback: I am writing a paper on C.D.C. I had never heard of this genetic disorder ntil my teacher assigned it to me. I have become very interested now. Your page is helping me learn much about this disorder. Thanks!

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Tuesday, March 31 - 1998 at 18:16:45

Name: alicia y enrique gordillo
Email Address: egfranco@eldigital.com.ar
How did you find this page?: From Special Kids WebRing
Feedback: we´re camila´s parents.we´re from rosario,argentina. our girl is a cri-du-chat, she´s four years old and she´s going at an ordinary kindergarten.we´re very pleased to have met you through internet and we´d like to get more information or any kind of advice about cri-du-chat kids. we also have two girls, laura and mercedes. camila is just learning to speak some words like mun and dad, and she´s recently begun phonodiology sections. camila is really a sweet girl and all in our family and our friends love her a lot.

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Sunday, April 12 - 1998 at 22:35:12

Name: Maria Sciberras
Email Address: marscib@waldonet.net.mt
How did you find this page?: Word of mouth
Feedback: Hi ! I'm Maria from Malta; I am an early intervention educator, and one of the children I have been given has CDC. I would like to get some more info about this disorder, because apparently here no one knows anything about it. Matthew turned 5 last March: his gross motor skills are quite OK, but his language is very delayed, at least that;s what I think. His parents are desperate for some more info, like is there any chance that Matthew will ever talk ? Thanks for this guestbook; it sure does feel better to be able to reach other people with a similar problem, after the reaction we had here. Maria Sciberras.

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Thursday, April 16 - 1998 at 00:06:25

Name: Stacey McDonald
Email Address: werhis@rma.edu
How did you find this page?: From a link on another page
Feedback: You should include more of the medial information, new updates, improvements, any ways of treating it, etc. I came to this web-site for a school project and found information but not a whole lot.

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Saturday, April 18 - 1998 at 20:32:51

Name: Cassie Young
Email Address: n/a
How did you find this page?: A search engine
Feedback: I'm doing a genetics report on this disease and just wanted to let you know that I am proud of all the parents who are strong enough to uphold and support their children no matter what. this really seems to me to be very trying on the family and I just wanted to let everyone know that all of you are in my prayers and in the prayters of many others. Thank you for making this information available to everyone else. Thanks again.

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Monday, April 20 - 1998 at 15:05:57

Name: Andy Graham
Email Address: andyg@york.prospects.org.uk
How did you find this page?: Word of mouth
Feedback: I'm Manager of a small Residential Home for Adults with Learning Disabilities. One of the folks who live here, aged 31, has C-D-C. Good to read through your Comments - but most seem to be about children. Is there any good information about older people and their needs? We want to support our client as best we can and any ideas would be welcome!

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Monday, April 20 - 1998 at 19:00:44

Name: Lucy Owen
Email Address: L.J.Owen@herts.ac.uk
How did you find this page?: From a link on another page
Feedback: I worked with a girl who had Cri-Du-Chat Syndrome in America but I was unable to find any information about it in England when I returned,except the basic biological definition. I am glad that there is a support group in Britain, as I became particularly interested in the syndrome whilst I was abroad. I am currently doing a PhD in Autism, but I will continue reading about Cri-Du-Chat Syndrome. Lucy Owen.

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Monday, April 20 - 1998 at 23:01:54

Name: cassie young
Email Address:
How did you find this page?: A search engine
Feedback: thanks again for this wonderful web-page. thanks to you guys, I got a really good grade on my report . i really am looking forward to more research on genetic disorders. Thanks again.

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Sunday, April 26 - 1998 at 07:55:42

Name: Robin Craig
Email Address: robincraig@hotmail.com
How did you find this page?: From a link on another page
Feedback: Just wanted to stop and say HI. I have a son who will be 9 in May.It would be nice to find other people around the world that have something to do with this disorder. Thank you for all your hard work. As well as taking time for me. Robin Craig Michael

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Sunday, April 26 - 1998 at 19:48:05

Name: James J Mazzaferro
Email Address: jjmllm#aol,com
How did you find this page?: A search engine
Feedback: Jessica IS 3.5yrs old she is sweet she is in per k 5days a week i like to talk to any about walking &talking thanks Jim

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Saturday, May 09 - 1998 at 02:28:27

Name: ‚`‚j‚h‚x‚n@‚j‚h‚s‚`‚a‚`‚s‚`‚j‚d
Email Address: anju@mb.infoweb.ne.jp
How did you find this page?: From a link on another page
Feedback: It's too interesting for me. I don't have baby. I work in a hospital because I'm a midwife. I often see a lot of genopathy baby.So I wanna know how do I have to take care of their parent. Thank you give your homepage.

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Thursday, May 21 - 1998 at 18:37:15

Name: Dana Renwick
Email Address: drenwick@hotmail.com
How did you find this page?: From a link on another page
Feedback: Hi! I work with kids and adults with disabilities and I think there needs to be more chat sights like this one for parents of children with special needs. I have never heard of Cri-Du-Chat Syndrome, buit browsing through your pages gave me a good idea what it was. Keep up the great work!!

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Thursday, May 21 - 1998 at 20:03:46

Name: Jennifer Roe
Email Address: opalbasil@hotmail.com
How did you find this page?: A search engine
Feedback: I have a 3 year old son, Dylan, who has CDC. Actually his is deletion from the 'p' portion and trisomy in the 'q' portion...due to one of my 5th chromosomes having "a little of the bottom at the top and a little of the top at the bottom". He really isn't doing too well...and I thought I would look here for any help.

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Friday, May 22 - 1998 at 16:59:43

Name: Brandon Barnes
Email Address: brandobarn@aol.com
How did you find this page?: A search engine
Feedback: I have gotten alot of e-mail from people asking for information about my 39 year old sister with Cri-Du-Chat Syndrome. I feel bad, because i was in the middle of a state to state move, and I have lost the e-mail adresses. If you have sent me e-mail in the past pertaining to this Syndrome, especially the person from India, please forward again. I apologize for any inconvience that this has caused. Brandon Barnes

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Friday, May 22 - 1998 at 23:30:23

Name: Amanda
Email Address: VelvetIvy@aol.com
How did you find this page?: Word of mouth
Feedback: My sister is 39 and has CDC. She wasn't supposed to live past three years of age. She wasn't supposed to talk, walk, or do any normal activities. She was supposed to be institutionalized as a baby. She walks, runs (carefully), talks, yells, throws fits, cusses (but don't we all?), and is stronger than most of my 9 siblings...in many ways. She rakes, smashes cans, sweeps, works at a center for mentally handicapped people putting toys in plastic bubbles for stores, occasionally sticks up her pinki and calls people she's mad at a "beesh" (she can't stick up her middle finger or pronounce prfanity very well...but boy does she try). She also has saved my family from a house fire, that would've killed them all and left me without the family I have today. We're all here because of her. And we're all reminded of what innocence and goodness really are, all because of her.

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Sunday, May 24 - 1998 at 20:54:50

Name: Heidi Rowe-Waid
Email Address: heidianddavid@mindspring.com
How did you find this page?: From a link on another page
Feedback: My daughter, Catherine, is 2 years old. She is missing almost the entire short arm of chromosome 5p. She is doing exceptionally well despite the vast amount of material that is lost. I would like to hear from other parents whose children have such a large deletion. I would love to hear from any parent or caregiver that wants to share information, advice, or just chat. Feel free to e-mail me anytime.

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Tuesday, May 26 - 1998 at 17:25:10

Name: Barbara Johns
Email Address:
How did you find this page?: A search engine
Feedback: I am a social worker who assists educators in helping children with special needs. A child we have in our school system has recently been diagnosed with cri-du-chat so I was searching the web for information to assist the child's teacher.

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Thursday, May 28 - 1998 at 16:01:01

Name: Denise Ladwig
Email Address: deladwig@excel.net
How did you find this page?: Word of mouth
Feedback: this is great. I hope to talk to other parents soon.

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Wednesday, June 03 - 1998 at 02:54:09

Name: Monique C. Phaklides
Email Address: phaklides@worldnet.att.net
How did you find this page?: A search engine
Feedback: This site has been wonderful and I plan to visit it often. Thank you for providing useful information.

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Saturday, June 06 - 1998 at 06:08:43

Name: M. Storm
Email Address:
How did you find this page?: A search engine
Feedback: Am 30 years old. Think about having children sometimes, but am a carrier for the CDC syndrome gene. Just looking - interesting and exciting to find so much information.

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Sunday, June 07 - 1998 at 03:32:54

Name: Anne
Email Address: wfamily@comnet.com
How did you find this page?: A search engine
Feedback: We are Canadians and have a 21 year old daughter with CDC. This web site is the first exposure I have had to other families with children with CDC. Jaime functions at a fairly high level and graduates from the special education system this spring!

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Sunday, June 07 - 1998 at 08:21:13

Name: Carlos Eduardo Rodriguez
Email Address: almedua@email.telnor.net
How did you find this page?: A search engine
Feedback: Im doing in this moment, a job about this syndrome.. and its really interesting.. Hope we can find some cure for this illness one day..

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Wednesday, June 10 - 1998 at 04:12:24

Name: Mandy Brotherstone
Email Address: m.brotherstone@clear.net.nz
How did you find this page?: A search engine
Feedback: I'm a physiotherapist working in Special Education and work with a young boy with Cri du Chat syndrome who is placed in mainstream with full time teacher aide support

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Saturday, June 13 - 1998 at 00:02:25

Name: Pamela Hill
Email Address: gpdsa@apex.net
How did you find this page?: A search engine
Feedback: I an really glad I found this. Sometimes I feel like we are the only family in the world that is dealing with this syndrome. I think it will be very good for me to be able to talk to others who know what it is like. Daniel is 21 and very active. He loves people and wants to be involved in whatever is going on around him. He just finished with our school system and soon we will be looking for another program for him but we wanted him to have a summer vacation first. Daniel has two brothers: Shawn is 16 and Adam is 14.

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Saturday, June 13 - 1998 at 10:11:41

Name: Tammy
Email Address: jobewonone@aol.com
How did you find this page?: From a link on another page
Feedback: Our daughter was born June 1, 1998 and was diagnosed with CDC. Am looking for all the information I can find on this syndrome. Would like to chat with other parents who have children with this syndrome.

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Wednesday, June 24 - 1998 at 22:19:37

Name: Shanaaz Edwards
Email Address: shanaaze@mweb.co.za
How did you find this page?: A search engine
Feedback: This is a wonderful discovery! After so many years of feeling rather alone with my problem, it is good to know that there are so many out there who share the same . I have a fourteen year old daughter with CDC.Now that she is going through adolescence, it is becoming more problematic.I would like to hear from anyone who has anything to share.

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Saturday, July 04 - 1998 at 04:30:38

Name: judie haffner
Email Address: haffner@psyber.com
How did you find this page?: Word of mouth
Feedback: I have a four year old grandson with this condition. I am searching for all information available on Cri du Chat Syndome.

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Saturday, July 04 - 1998 at 14:25:23

Name: Michelle Mottershaw
Email Address: MMOTTERS@aol.com
How did you find this page?: From Special Kids WebRing
Feedback: I was surprised to see Boo on the internet! The world really is your oyster!

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Friday, July 10 - 1998 at 15:34:48

Name: Janet M-O
Email Address: Janet McAuly Oliver@MAIL.CEPP.ORG
How did you find this page?: A search engine
Feedback: It was very useful to read different parents' stories. I am a speech language pathologist who works in the field of Augmentative and Alternative Communication. I have a new 3 year old child on my caseload with Cri-du-chat. I am trying to learn as much as possible in order to provide her and her family with optimal services.

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Saturday, July 18 - 1998 at 06:11:10

Name: Shirley Ely
Email Address: shirley@subsonic.com
How did you find this page?: A search engine
Feedback: I have a grandson with cdc.He is 5 years old and does very well in our eyes.I have just found this web site. I know it will become a valuable tool. I have a grandson with this disorder. He was more delayed than your daughter but he is now 5 years old and in our eyes is doing much more than than we were lead to expect. He walked at age 2 and now runs at full speed most of the time. His speach is very limited but he does say mama, dada,bubbles and most vowel sounds. He knows the primary colors and the signs and sound for them. We will be excited to learn more from parents with these children. My E-mail address is: shirley@subsonic.com.

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Tuesday, July 21 - 1998 at 21:57:21

Name: Debbie DePaola
Email Address: lava@nicoh.com
How did you find this page?: Word of mouth
Feedback: I learned of this webpage through the 5-p newsletter. What a great way to keep up on what's new with this syndrome

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Tuesday, July 28 - 1998 at 13:00:00

Name: KHADINE WATSON
Email Address:
How did you find this page?: From a link on another page
Feedback: I HAVE JUST RECENTLY BEEN TOLD THAT MY NEW BORN NIECE HAS BEEN DIAGNOSED WITH CDC AND I HAVE BEEN SEARCHING THE NET TO GET INFO, AS NOBODY SEEMS TO KNOW WHAT IT IS ALL ABOUT. IF ANYBODY CAN HELP IT WOULD BE ABSOLUTLEY BRILLIANT THANKS KHADINE (VERY WORRIED)

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Sunday, August 02 - 1998 at 14:11:08

Name: Elissa
Email Address: markw@alphalink.com.au
How did you find this page?: A search engine
Feedback: Hi everyone! I am 17yrs old, and my 3yr old niece suffers from CDC. She can now stand up by herself and she is beginning to take a few steps by herself. If anyone would like to share stories then be sure to contact me!

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Sunday, August 09 - 1998 at 14:30:39

Name: Angie Stokes
Email Address: angie.s@virgin.net or cdcssg@yahoo.co.uk
How did you find this page?: Word of mouth
Feedback: Hello. I'm Angie, the National Co-ordinator of CDCSSG in UK. Just got on the 'NET' and havn't got a clue what I'm doing. Boo my eldest has CDC and is 7 yrs.

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Sunday, August 09 - 1998 at 18:05:38

Name: donald, maureen, melissa patterson
Email Address: dpatter815@aol.com
How did you find this page?: A search engine
Feedback: GRANDSON DIAGNOISED WITH THIS PROBLEM, WE ARE TRYING TO FIND AS MUCH INFORMATION AS POSSIBLE. GRANDSON IS ONE MONTH NINE DAYS OLD.

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Wednesday, August 12 - 1998 at 00:30:50

Name: Joe Eickmeier
Email Address: JEickmeier@AOL.com
How did you find this page?: A search engine
Feedback: Our daughter of 3 weeks has cri du Chat trying to find out how I can help her.

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Saturday, August 15 - 1998 at 05:24:29

Name: Mark Beck
Email Address: MLHIHHHH@AOL.COM
How did you find this page?: A search engine
Feedback: I have a brother and sister in Christ, who just got the dx.today of Cri-Du-Chat in their 4 mo. old. They were given very little hope, but this web site, which is an answer to prayer, should really cheer them up! I can hardly wait to talk to them. May God bless you all.

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Monday, August 24 - 1998 at 20:26:34

Name: TAMMY DAWSON
Email Address: DEANOTAMMY@aol.com
How did you find this page?: Word of mouth
Feedback: HI, I JUST WANTED TO SAY I REALLY THINK THIS IS A REALLY GOOD SOURCE OF INFORMATION FOR PARENTS WITH A CHILD AND FOR PARENTS JUST HAVING A NEW BABY WHOM HAS BEEN DIAGNOSED WITH 5P-. ANYWAY I HOPE PARENTS CAN BEGIN TO USE THIS WEB SITE MORE NAD MORE TO SHARE EXPERIENCES AS WELL AS TO LEARN MORE AND MORE ABOUT OUR KIDS. KEEP UP THE GOOD WORK AND LEARN ALL WE CAN FROM EACH OTHER SO OUR KIDS CAN BE THE BEST THEY CAN BE PARENTS CANNOT DO IT ALL ON THERE OWN IT TAKES SUPPORT AND NO ONE SHOULD BE SKEPTICLE ABOUT REACHING OUT THAT IS WHY THE HOMEPAGE IS HERE. THANKS AGAIN.

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Thursday, August 27 - 1998 at 17:53:32

Name: nebil bozdogan
Email Address: nebilb@domi.com.tr
How did you find this page?: From a link on another page
Feedback: Hi, I am a plastic surgeon. My patient coordinator Neslihan has a baby diagnosed as Cri du Chat syndrome. I would like to have information about positive and negative signs of the disease related with the prognosis (mental and physical retardation).

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Saturday, September 19 - 1998 at 15:03:58

Name: paul phillips
Email Address: selena@tinet.ie
How did you find this page?: A search engine
Feedback: Family friend has daughter of 16 years with cdc, would like to information on banging of the head and picking of the skin is this a phase she going through or a condition of cdc?. she being doing this for as long as i can remember. would love to hear from people with same problem? thanks

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Monday, September 21 - 1998 at 00:54:27

Name: Krista Osborn
Email Address: kristao@bellsouth.net
How did you find this page?: A search engine
Feedback: I am the proud aunt of a 15 yr old girl with CDC. Her name is Heather and I am trying to get as much information for our family. My sister and I would love to hear from a family living with CDC

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Tuesday, September 29 - 1998 at 04:26:46

Name: Shelley palmer-Salomone
Email Address: spalmer_salomone@hotmail.com
How did you find this page?: Word of mouth
Feedback: I want to thank Mary Beth Morris for calling me out of the blue and talking to me about her daughter and listening to me talk about mine. I am so happy to have been told about this site. I have a 7 year old daughter who was diagnosed with CDC when she was a little over 2 years old. Her name is Taylor and she is very high functioning. I know I will definately be visiting your site often.

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Sunday, October 04 - 1998 at 22:46:59

Name: Lesley Pelley
Email Address:
How did you find this page?: From a link on another page
Feedback: I babysit a 10 year old boy who has Cri Du Chat Syndrome. He is the sweetest kid in the entire world. I just happened to look on the net for information about him and stumbled across this page. I feel that information access is very important, especially to new parent's with children with Cri Du Chat. I understand how this syndrome can be very overwhelming. So to all parent's with Cri Du Chat children, your doing a great job.

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Thursday, October 08 - 1998 at 05:15:00

Name: Laurie Haas
Email Address: laureled@gte.net
How did you find this page?: A search engine
Feedback: I am a teacher and one of my students has this syndrome and I would like to learn more about it could you please send me additional information. Thank you so much.

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Tuesday, October 13 - 1998 at 13:23:01

Name: Helen
Email Address: helliemac@ozemail.com.au
How did you find this page?: Word of mouth
Feedback: I have an 8 year old daughter with Cri Du Chat. She goes to normalmschool and is talking quite well. So I guess is high functioning. Her name is Hanne and lives in Sydney Australia. We have just got on the net.

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Wednesday, October 14 - 1998 at 17:42:40

Name: Jay Saseen
Email Address: jsaseen @access.k12.wv.us
How did you find this page?: Word of mouth
Feedback: Hi, my name is Jay and I am a Special Education teacher. I currently have two teenage students in my classroom with "Crie Du Chat". I have had success in dealing with some of the behaviors. I would appreciate any information on this syndrome?

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Thursday, October 15 - 1998 at 04:31:45

Name: kimberly
Email Address: klclou@sedona.net
How did you find this page?: A search engine
Feedback: I am a grad student at NAU in SLP and I would greatly appreciate any practical, applicable therapy tips, activities, etc. I am specializing in early child language disorders and am giving a presentation on CDC. Any help would be greatly appreciated, thanks.

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Monday, October 26 - 1998 at 16:02:35

Name: carolyn oneil
Email Address: cal320
How did you find this page?: Word of mouth
Feedback: I think it,s supper to have all the support systems of today. When our daughter was born I would spend hours on the phone trying to get information . Family and doctors were supportive but there was little information. After 34 years we are still learning with our daughter. The www certainly makes you feel less alone. Sincerly cal320

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Monday, October 26 - 1998 at 23:50:02

Name: Janet
Email Address: jhemphi@ibm.net
How did you find this page?: Word of mouth
Feedback: Hi Carolyn: I tried to email you, but the cal320 didn't go through. Perhaps you could send me a message, I will return yours. Thanks

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Thursday, October 29 - 1998 at 20:33:07

Name: Cayna ,Alma
Email Address:
How did you find this page?: Word of mouth
Feedback: HI THIS IS CAYNA AND I AM DOING A REPORT ON CRI DU CHAT OR CATS CRY SYNDROME I AM VERY INTERESTED IN ''CCS''. HELLO THIS IS ALMA DINSMORE AND I AM CAYNAS REPORT PARTNER. ALSO SHE IS A FRIEND OF MINE.

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Wednesday, November 04 - 1998 at 19:32:47

Name: Janet H.
Email Address: jhemphi@ibm.net
How did you find this page?: Word of mouth
Feedback: Hi to everyone connected with CRC: I was just reading all the messages since last January, it is so great to see all these names looking for info and help. I hope that mostly everyone has been connected with someone to help them with their questions and answers. I know that this site and also the chatline are excellent forms of attaining info and making new friends. I live in Western Canada. We have a Grandson who is nine years old who has CRC. If anyone would like to email or just chat I would greatly appreciate it! Thanks again Jeff Nonely for putting together this web site!

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Friday, November 06 - 1998 at 23:59:33

Name: Brian & Linda Calvert
Email Address: brian@calv45.freeserve.co.uk
How did you find this page?: A search engine
Feedback: Tom's our Grandson, he's six and very beautiful. Just found this page and will read and get back to you all. bibi & God Bless

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Saturday, November 07 - 1998 at 07:10:46

Name: Steve & Lisa Quattro
Email Address: quattst@bellatlantic.net
How did you find this page?: A search engine
Feedback: Our daughter is nine years old with CDC syndrome. She has some minor behavioral problems (extremely active) and is non-verbal, which makes her challenging sometimes. She also has the sweetest dispostion and has more fun than anyone else that I know on this earth! To deal with her hyperactivity we are using Ritalin and she uses a Dynavox communication board to augment her signs, words, gestures, etc. We are also "mainstreaming" her in the local elementary school 1/2 day while she attends the county "special sercives" school the other 1/2 day. Does anybody have any experiences with these issues?

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Tuesday, November 10 - 1998 at 06:55:34

Name: Denice Nielson
Email Address:
How did you find this page?: From a link on another page
Feedback: I love your web page. I am writing a report regarding cri-du-shots and enjoyed browsing your page. Thank you.

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Wednesday, November 11 - 1998 at 20:21:15

Name: DeNeal Toews
Email Address: dah0917@okstate.edu
How did you find this page?: A search engine
Feedback: I am student majoring in speech-language pathology. I am writing a report on Cri-du-chat. Your site has been very helpful.

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Thursday, November 12 - 1998 at 05:07:58

Name: Kevin Lagrone
Email Address: kevinlagrone@hotmail.com
How did you find this page?: A search engine
Feedback: How amazing it is to find a sight that just might be worth visiting... I have a son named Dennis, age 13, with cri du chat. The MOST loveable kid you'll ever meet. Kevin

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Saturday, November 14 - 1998 at 20:32:45

Name: melanie Spath
Email Address:
How did you find this page?: From a link on another page
Feedback: as a special education major at New Jersy City University i was thrilled to stumble upon information about a little known syndrome

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Wednesday, November 18 - 1998 at 23:16:20

Name: Lianne Gentle
Email Address: lgentle@aol
How did you find this page?: A search engine
Feedback: Thankyou it took a long time to get here because of a spelling error. I,m a social worker at res school wanting info on a partic aspect of syndrome ? sleep apnoea or breathing diffs in partic. I f you have any info i,d appreciate an e.

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Friday, November 20 - 1998 at 01:29:04

Name: Karen Weatherbe
Email Address: dgweath@pathcom.com
How did you find this page?: A search engine
Feedback: I am a special education teacher and recently a teenage girl with Cri-Du-Chat syndrome has been enrolled at our school. As it is such a rare condition it has been difficult for us to get useful information to help us to program for this young girl. I would appreciate communicating with parents or educators.

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Friday, November 20 - 1998 at 19:56:36

Name: cindy
Email Address: boultown@itol.com
How did you find this page?: Word of mouth
Feedback: My son Matthew has Criduchat,and his teacher showed me this page. Matt is 6 yrs old and we (his family ) would like to know everything we can to help him out. Matt has a low vocabulary but tries to speak. At this time we are useing the pecs system at school and at home. Matt has been getting therapy since he was 9mos. old. He started early childhood when he was 3yrs. He now attends a combination of classes. He still goes to early childhood but also goes to Kindergaten. with that he gets speech, occupational,and physical therapies. Matt is a very happy little guy. He also is very active. Our home is child proofed. But it is harder to childproof your home for a 6 year old. He can reach so many places. He also like to stick things in his mouth. But most of the time now it just to get a reaction. We are trying to toilet train. We could use any suggestions anyone might have. He is taking tenex for behavioral which seems to be keeping him more on task at school. We have also been using the DMG with a vitamin supplement for the last 2 1/2 yrs.

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Friday, November 20 - 1998 at 19:57:01

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Sunday, November 22 - 1998 at 17:52:52

Name: Tiffany England
Email Address: tiffany_england@hotmail.com
How did you find this page?: A search engine
Feedback: Hi, my name is Tiffany and I am 16 years old. I would just like to say "Thank You" for all the information I have received from your sight. I have a new baby cousin, Alexis, that has been recently diagnosed with CDC.She is now 2 months old. Since birth she has had to constantly be on oxygen and medication. Also, she was born with only one kidney. Baby Alexis has a long road ahead of her, but the information I have found definately out a more positive outlook on her future. The most helpful link to us was Lauren Hall's webpage. She has done an excelent job telling about her life with CDC. I would appreciate any information or personal stories about CDC that anyone could e-mail me. It would really help our family to deal with CDC, since we haven't heard of it until now. Thanks once again.

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Tuesday, November 24 - 1998 at 16:55:08

Name: Marge Resan
Email Address: margehr@hotmail.com
How did you find this page?: A search engine
Feedback: I am a special education teacher at a public high school in Madison, Wisconsin. I have worked with a 15 year old student named Hart with CDC for two years now. Hart is a wonderful, active, curious and intellegent young man. My biggest challenge as Hart's teacher is finding ways to help Hart communicate his thoughts and ideas appropriately. He will often become agitated and show some aggressive behaviors when he is not understood. He is learning a few words and is using them more frequenly, and has used a limited number of signs. Any ideas or suggestions would be very helpful!! As Hart is getting older, (and BIGGER!!) the episodes of aggression are growing more dangerous not only for him but also for his family and friends. Please email me with any ideas that have worked!! Thanks!! This is such a wonderful site, the information here is extremely helpful.

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Friday, November 27 - 1998 at 02:47:13

Name: Loreasa
Email Address: Loreasa@Webtv.net
How did you find this page?: From a link on another page
Feedback: I am so glad to be on line. I have a 16 year old girl with Cri du Chat. It was so good to see pictures and be able to talk to other families.What a blessing.

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Saturday, November 28 - 1998 at 09:18:37

Name: Ruth Ginsberg
Email Address: easy@pacbell.net
How did you find this page?: From a link on another page
Feedback: I am a graduate student finishing my masters degree in Speech-language pathology. I am researching Cri Du Chat for a class covering various genetic syndromes. This website has been wonderful in providing information and personalizing the syndrome. I am so touched to see such wonderful cohesive supportive groups where people can communicate and receive feedback. These groups serve an incredibly important function. Thank you for providing a site where someone like myself can learn about Cri Du Chat and acquire very useful information. I find all the parents so inspiring and I have become quite emotionally affected as a result of reading about these wonderful children. I have found limited information on the long term outcome for these children and would appreciate any additional information someone can offer. Also, I have noticed that many or most of the children with Cri Du Chat see a Speech Pathologist. As a soon-to-be Speech Pathologist, I would love here about any suggestions/ideas you many think are useful to know and learn from. Thank you again for a wonderful opportunity to learn!

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Wednesday, December 02 - 1998 at 13:44:16

Name: Eileen Nolan
Email Address: AEChatburn@aol.com
How did you find this page?: A search engine
Feedback: Hi my name is Eileen I have a daughter with CDC. Her name is Susan and she is 31 years old. We live in England. She is a severe case and is unable to walk or talk. I am 54 years old and was widowed 2 years ago I care for Susan myself but have a lot of help for Susan in bathing etc. Susan attends an Adult Training Centre 5 days a week and is very happy there, she is in the Special Care Unit. If anybody would like to discuss experiences please contact me c/o the above EMail address.

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Thursday, December 03 - 1998 at 06:55:50

Name: James&Brenda Kraft
Email Address: james.e.kraft@gte.net
How did you find this page?: A search engine
Feedback: We have a beautiful little girl-Emily, four yrs., always happy,no speech yet, but signs& follows some instructions.DADDY'S GIRL! Climbs like a monkey& gets into everything! When frustrated, she lets us know by pinching and making a sad face. She was diagnosed @ 4 Wks. and it broke our hearts,but things are better now (although still difficult)She's been in early intervention since six mo. We have also two sons, ages 6 yrs.& 11Mo. We would be interested in hearing from others with older kids& how they dealt with problems and education choices (our rural school system will force her into mainstream next year).

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Tuesday, December 08 - 1998 at 03:55:02

Name: Geoffrey Downes
Email Address: geoffdownes@hotmail.com
How did you find this page?: From a link on another page
Feedback: Urgent: please respond if you can help. My sister and her husband, Jenn and Jack Zurlini of Santa Barbaram, California, discovered a few days ago that their week old daughter Cassia has cri du chat. Apparently a small percentage of sufferers also have heart conditions of varying severity as a consequence of the condition. Cassia has six such idnetified defects, and is facing imminent and life-threatening open heart surgery at UCLA Medical Center. Jenn and Jack are desperate to talk with anyone whose cri du chat child has a heart condition, and who suffers from no additional chromosomal deficinckes beyond Cp- (cri du chat). The heart medication that had been stabilizing her condition seems to be losing effectiveness, and they may be forced to make a premature decision on the surgery, while Cassia remains relatively strong, without sufficient information to evaluate the wisdom of such an operation. Is there anyone out there who can provide any helpful information for us? It is as I say urgent. E-mail me at geoffdownes@hotmail.com. Thank you, Geoff

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Tuesday, December 08 - 1998 at 17:25:34

Name: Jay D. Hudman
Email Address: cgj5y@allstate.com
How did you find this page?: A search engine
Feedback: My wife and I have a 2.5 yr old girl with CDC named Sarah. She is wonderful. No speech or walking but we're working on it. She is learning to eat and we hope to have her g-tube out in a year or so, but we have learned to be very patient. She loves to laugh and get into everything. She likes to bite but we have almost licked that problem. If there is anyone who would like to chat or needs info. send me an email. I'm sure some or most of you have heard of Dr. Mary Carlin. She has alot of good, positive info on CDC as she has studied it for years. Good luck to everyone and their sweet kids.

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Thursday, December 10 - 1998 at 11:31:22

Name: Lemmens Rudy
Email Address: Rudy.Lemmens@GEPEX.GE.COM
How did you find this page?: Word of mouth
Feedback: I am the fhater of Iris, a 12year old girl with C.D.C. We live in Belgium, in Deurne close to Antwerp. I was glade to find this side, so keep up the good work.

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Thursday, December 10 - 1998 at 22:13:40

Name: Shari Campbell
Email Address: campbsh@mail.auburn.edu
How did you find this page?: A search engine
Feedback: This is a great page. I love the picture gallery, my husband and I will have to send you some photos of our little Amy. Amy is 7 years old and she is our little light! she is delightful and devilish at the same time! We are interested in talking with or emailing other parents, would love to hear from anyone! Thanks for keeping this website so up to date!

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Monday, December 14 - 1998 at 23:50:28

Name: S. Foster
Email Address: sfoster@corridor.net
How did you find this page?: From a link on another page
Feedback: This site has helped a lot. I'm doing research on 5p- for Biology.

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Tuesday, December 15 - 1998 at 02:12:47

Name: Kevin Crossley
Email Address: kevin_crossley@compuserve.com
How did you find this page?: A search engine
Feedback: A friend of ours has a baby just diagnosed with CDC. Are there any groups in the Central Coast of California, Santa Barbara, Ventura area. Thanks for a wonderful site!

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Wednesday, December 16 - 1998 at 20:04:25

Name: Pavel Chalupa
Email Address: chalupa@heitec.cz
How did you find this page?: A search engine
Feedback: Our son Vitek is the 8 years old CDC child. I am really surprised how many links I´ve got searching for Cri du Chat links. Vitek has started at a special school this September and he is making progress. He recognizes characters, counts 1 to 10 (O.K. - in a good mood only) and it´s a lot of fun with him. We are from Czech Republic, Karlovy Vary (Karlsbad) and we are not in contact with any CDC community here. Having more time I will sure go through guestbook´s entries and maybe reply to some of you. Hi, Pavel.

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Monday, December 21 - 1998 at 18:35:27

Name: Jesse Aguirre
Email Address: jesse@fminternational.com
How did you find this page?: Word of mouth
Feedback: My nephew has Cri-Du_Chat (Aaron Dimas), I attended the conference in Seatle Washington with his parents.

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Tuesday, December 22 - 1998 at 04:47:58

Name: Tricia Lucas
Email Address: tricia@telestrategies.com
How did you find this page?: A search engine
Feedback: I have a son with a variant of 5p- syndrome who is 19 months old. I am looking for information. We have determined that he has a heart defect (ASD), a moderate hearing loss, and fine and gross motor delays. I would love to find anything relating to his specific needs.

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Sunday, December 27 - 1998 at 06:06:37

Name: Stacey
Email Address: StaceyGgrlAol.com
How did you find this page?: From a link on another page
Feedback: I really found your page to be insiteful and interesting.I just recently learned of CDC and i am doing a report on it. I was wondering if anyone who sees this could email me : StaceyGgrl@aol.com It would be greatly apprecited. God Bless- with love <3 ~Stacey~

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Monday, December 28 - 1998 at 23:30:46

Name: gail vasko
Email Address: JadeIdLady@aol.com
How did you find this page?: Word of mouth
Feedback: i think this website is awesome! i am the aunt of a child with cri du chat syndrome and i babysit for her while her mommy and daddy work during the day, and i thought maybe i could learn more about cri du chatby visiting this site and i was right, i want to Thank You one and all! i try and do things with becca every day and now with this website i know different things that we can try and do together. thank you once again, and i feel like i have met some new friends. yours truly, gail

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Tuesday, December 29 - 1998 at 22:05:49

Name: Gina
Email Address: don't have one yet!
How did you find this page?: Word of mouth
Feedback: My daughter Anna-Marie has CDC. She is now six years old. We found out when she was 2 months old and it was a very scary ordeal for me. I had Anna when I was 17 and it was hard enough to become a teenage mother but Anna and I learned together. She has brought alot of LOVE into my life. She has also brought frustration and pain. I also can't imagine life without her. She has alot of behavioral problems and they tend to change thoughout the years. I am interested in finding out more information on CDC and am also hoping to be able to connect with some other parents. I will leave my E-mail address as soon as I get One so you can contact me until then I will wait for a message or try to contact some of you! THANK YOU ALL FOR BEING HERE!

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Wednesday, December 30 - 1998 at 00:02:50

Name: Peter Green
Email Address: peter@mcsaleters.demon.co.uk
How did you find this page?: Word of mouth
Feedback: Jeff, you are a hero for setting this up. It is bigger and better than I ever imagined it would be, and I will call again. Happy New Year. Peter, Sally, Greta and Piers.

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